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Patient
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Interested in learning about a specific disease or genetic disorder?
Want to enroll in a clinical trial? Looking for qualified trial candidates?
In our “Patient” section you can learn about clinical trials, and how to enroll in clinical
trials being conducted in the region; access local and national supporting resources; and through
our calendar of events learn about upcoming association, patient and educational related forums,
and seminars. Clinical professionals can obtain information about our unique clinical trial advertising services that allow you to cost effectively
target your candidate recruitment locally or nationally. If you have a question
about our clinical trial posting services or are aware of a supporting resource
that we should include, please submit it through the following:
Feedback.
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Patient Resources:
Related Resources:
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September is National Sickle Cell Month
Sickle cell disease (SCD) affects people of many racial and ethnic groups. In the U.S., 90,000 to 100,000
people, mainly Blacks or African Americans have SCD. The disease occurs among about 1 of every 500 Black or
African-American births and among about 1 out of every 36,000 Hispanic-American births.
SCD can be a life-threatening condition and social, economic, cultural, and geographical barriers often
limit access to comprehensive care. Advances in patient advocacy preventative screenings, as well as
access to resources, have increased the quality of life and life expectancy of people with SCD. More...
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